South African genomics projects direct 10% of budgets to community-chosen benefits. South Africa is pioneering new ways to embed ethical benefit sharing in genomics research through community-led decision-making.
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Trechos de apoio da pauta: South Africa is pioneering new ways to embed ethical benefit sharing in genomics research through community-led decision-making. Speaking at the World Congress of Bioethics (WCB) in Johannesburg on 8–10 July, Ngoni Ngwarai, assistant director of systems and operations at the SAMRC/Wits Rural Public Health and Health Transitions Research Unit (Agincourt), presented an operational blueprint for researchers, universities, funders and industry partners seeking to translate ethical principles into practical action.
- Ponto de atenção: south.
- Ponto de atenção: african.
- Ponto de atenção: genomics.
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